This is such a terrible, rotten illness. The changes won’t stop.

Today we were having lunch with our friends, Mary Anne and Richard, so when Bo got up (at 11:30) I had a note on the whiteboard on the kitchen table.  He read it, then began asking the questions:

Who are Mary Anne and Richard?  I don’t remember them.
What time are we meeting them?
What should I wear?
Who are we meeting?  Do I know them?

Again and again.

I showed him computer  pictures of Mary Anne and Richard.  He looked at the pictures but remembered nothing … not them … not their dog … not their boat, the one we’ve spent days and weeks on.

The same questions continued for an hour and a half , even after we parked the car and while we were walking toward the restaurant. Who are we meeting?

But then as we stood outside the restaurant, he announced, “There’s Richard across the street.”  And he was right.

Later, while we were eating,  Mary Anne asked about our new dog Emma.

“What dog?” Bo asked.

“Emma.  Our dog.”

“We have a dog?  I didn’t know that.  Why haven’t I seen her?”

I talked about Emma, and Bo was completely confused,  yet an hour later,  when we arrived at our car,  he teased me, saying, “Where’s the dog?  She must have escaped from the car.”  (She gets daily rides with us.)

Tonight I taught my classes , and as I do each Monday,  I left Emma’s food covered with Saran wrap  on our dryer in the laundry room where she eats. At 5:30 I called to tell him where it was and where to set it so Emma could eat her dinner.  I actually asked him to walk into the laundry room as I was on the phone so I was sure he found it.

But when I got home, the full food bowl still sat  on the dryer.  He must have put a tablespoonful of food into her water bowl because the water was murky.  And in the kitchen I found him with  Emma and Mikey cat, all eating ice cream.

So this is the way things are now:  unpredictable,  unexpected.  Sometimes confused, sometimes not.  Some days good and some days bad.  It’s the Alzheimer’s way.

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5 Responses to Who?

  1. Barney Hungerford says:

    It won’t help but I have had three master swimmers that I’ve coached and watched
    the changes as it comes on. Good days and bad days. But its two steps backwards
    but only one forward. My heart goes out to you.
    barney (in Orlando until three days after Christmas.)

  2. greg says:

    And yes, the days for him will be confusing but for us it will be even more. Keep him happy and go into his world, There, he is calm, happy, and comfortable. Redirect and refocus because logic doesn’t not play into this equation of dementia.
    I am still walking the walk.

  3. Pat says:

    Nancy, my heart goes out to you as well. It IS a terrible,rotten disease and it manifests itself differently in each person, and yet the same. My mother is in SilverCare, so I see many dementia patients. (And I have become very fond of many of them.) I think they come to a point of unawareness. They don’t realize they are different, and in a way, that is a blessing.
    God Bless you, both, and give you strength.

  4. charlotte guarino says:

    This desease leaves me speechless. I can only imagine what you go thru day in and day out.
    May you have more good days than bad. My thoughts and prayers are with you both.

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