I haven’t written a blog for a month, mainly because nothing big has happened. As our Hospice nurse said, it’s a plateau. If anything, Bo has been better …. up earlier, awake longer, eating three meals, sleeping better.
But there are little things that we notice, changes that illustrate his decline.
One afternoon two weeks ago, for example, I gave Bo two mixed up decks of cards and asked him to “help me” by arranging them in piles. It took a long time, but there were piles of cards — aces on aces, tens on tens, jacks — a job well done.
Yesterday I gave him the same job to do, but this time after an hour at the kitchen table, he couldn’t do it. He was so confused that I wasn’t even sure what he had tried to do. It was as if he couldn’t tell the difference between the cards …. Did an Ace look like a ten? A Queen like a jack? When I tried to help him, it was obvious that he couldn’t understand, so I removed the cards and took him into the family room to sit.
We’re also noticing that he has more language problems. Today at lunch he couldn’t form words, just spoke a sort-of gibberish. Jon commented that his eyes seemed to be less focused, a blank look.
And the sundowning continues, filling many evenings with anxiety.