And so, another month has passed since I posted my last blog. In that time, not much has changed. Life goes on quietly and sadly.
Things are calm here right now. Bo “came back” from a very bad decline while I was away, not because I wasn’t here but because … who knows why. His meds were changed, maybe it was that. To be honest: simple things can cause a big decline in him. He has good care, whether it is our part-time caregivers or Jon, who treats him like his own father.
Bo’s decline was so bad that he couldn’t walk — just took mincing steps as we “pulled him” along and kept him from falling backwards. Didn’t talk, only slept, had to be fed. In fact, Hospice lowered his condition a level. Now he’s able to get up, walk, eat, communicate a bit; but even with this, his day is (usually) sleep (18-21 hrs.) and eat.
Some days Jon takes him out in the car, but I don’t even know if he understands what’s happening. They get ice cream or drive me to Phila. for lunch with a friend. (While I eat, they drive around and get fast food.) He still calls me by my name or nickname and says “I love you too” when I tell him I love him. I think sometimes he has things to say but he just can’t finish the sentences. Occasionally he makes a short comment that is related to what we’re talking about.
It’s summer again and time for NancyCamp** for the two children and me. Our first activity was last Saturday evening when I took them to our own downtown (Haddonfield) to find the pieces of art that the Philadelphia Museum of Art has on exhibit* in public places. We walked up and down the streets, reading the information about each piece and taking pictures.
*For local readers, Haddonfield is the only New Jersey installation of the “Inside Out” art exhibition by the Philadelphia Museum of Art this summer.
**Also for local readers, several of you told me that you’d like to attend an Adult NancyCamp. I will do it in July. Please contact me if you would like to join in the activities.